Monday, May 11, 2015

Dementia and Fear of the Future



I suspect that it is not all that unusual for people of a certain age to start to wonder about their future. Given the amount of media attention that is occasionally paid to Alzheimer's or other forms of dementia, the occasional joke amongst friends about "a senior's moment' (which is a polite way of talking about a lapse of memory) or the perennial older person who may be a bit forgetful on some television sitcom, it is not surprising that growing old is, on occasion, part of our thoughts. And the news is generally not good.

Dementia and others related conditions are not curable and our traditional methods of supporting people are quite frankly abysmal.  The two choices for care are to either to leave those individuals in the community with a patchwork of support systems that rely heavily upon the family and potentially put both the caregivers and the individuals at risk, or to warehouse people in large institutions that were initially designed as quasi medical facilities staffed with too few staff and an administrative structure that is focused on economic efficiencies. It is not surprising that so many Canadians are advocating for laws that allow for some sort of assisted suicide. Too many of us have spent time in those custodial institutions with our parents. We have seen the lost souls wandering around, frequently agitated because their memory loss prevents them from understanding their world they now inhabited populated by strangers and sights that are totally foreign to them.

There are some interesting alternatives being developed. In Holland "De Hogeweyk' is a village-style neighbourhood for elderly residents with dementia, offering maximum mobility and an opportunity to lead a normal and active daily life" (Detail Online). It is a community especially shaped for individuals who are struggling with memory loss by creating an environment that will feel familiar to them. Living spaces that feel more like a community both in terms of size, of the era they are decorated in and who lives in them. The assumption is if people can live in small houses or apartment like settings, eat and spend time in places that look like something they can remember from their past and socialize in whatever way they can with people of similar backgrounds and experiences, then they will be less anxious and hopefully happier.

This model is slowly being exported to other countries. A year or so ago, Georgian Bay Retirement home in Penetanguishene, Ontario created a similar type of environment (CBC). It has specifically designed rooms that allow the residents to feel as if they are living in a world that is familiar.

Not everyone agrees that such environmental modifications are either necessary or in fact helpful. There is an argument to be made that it is unethical to lie to patients as to what is actually happening. That by creating a false or pretend living space we deny to those individuals what grasp they may have over today's world. From my perspective - if I no longer can remember in any great detail the world I live in and if society does not have the courage to allow the plug to be pulled, then the least it can do is to let me live in a world, that may be false, but at least it is less stressful or more comfortable.

The geography, the history and the very fabric of society in Canada has for the last 60 years been shaped because there were (and still are) so damn many of us baby boomers. Public schools were built to accommodate us, universities were expanded, the college system was created, suburbs developed and now more alternatives will be created for seniors. We know that we don't want to live in retirement/nursing homes. We know that there must be alternatives. It is nice to see that some of those possibilities are already in existence. There will be more.

No comments:

Post a Comment

Blog Archive

Followers