Monday, May 18, 2015

Jumping the Queue/Liver Transplants


CORRECTION: As of today (May 19) while there have been many volunteers - a match has not yet been found

Eugene Melnyk will, in all likelihood, get a new liver in the next few weeks. He received the good news just over a week after he went public with his condition. Without any hesitation or any sarcasm in my words or attitude let me say - I think that is great news. Anytime someone has a life threatening medical condition and gets to live longer and healthier life - we should all put that in the win column. The only question is why him and not one of the 700 or so people across Canada waiting for a liver transplant (number is a guestimate based on a 2004 report (NCBI)). Is Mr. Melnyk a particularly charitable individual? Has he done something extraordinary in terms of making the world a better place?  No - his main claim to fame appears to be that he owns a professional hockey team. Within a day of the press release describing his critical condition he started to get offers from complete strangers for a piece of their liver. He was fortunate that a good match was found between him and one of the volunteers. Finding a good match is all about the numbers. The more livers there are to choose from, the more likely it is that that a good match will be found.

If Mt. Melnyk's  condition and the extraordinary response from hockey fans meant that we had turned a corner in Canadians willingness to donate their organs, then I would be delighted. If the public awareness generated by Mr. Melnyk led to many more lives being saved, it would be a win-win situation for everyone. However I think the sad reality is that by next month people will have forgotten this minor celebrity reality show and moved on to something else. The number of people signing a organ donors card (and telling their family) will not increase. It is more than sad that we live in a world where someone with money or a particular claim to fame gets special attention while others equally as deserving get very little attention. From all reports it is not that Mr. Melnyk wanted this attention. In fact it appears that he was reluctant to use his fame to find a liver. One can't blame him for doing all that he could to save his life. But one should be able to blame someone for the fact that there is an inherent unfairness in a system that requires an individual to beg, through the media, for their life. It is even more unfair when those who are popular or pretty or rich have a much better chance of winning.

I have to wonder about the people who indicated that they would be prepared to donate a chunk of their liver. What made them agree to surgery (no matter how safe it is reputed to be - it is still surgery with all of its inherent risks) - to give up part of their body to a complete stranger? Why would they not agree to do that for anyone on the transplant waiting list? Why was giving a piece of an organ to a famous/rich/powerful person so important to them?

I can't help but wonder what it must feel like to be a person, on the liver transplant list, who has been waiting for weeks, perhaps months for the phone call that says "we have got a match and you are next in line" to know that someone has, because of that person's position in society, jumped the queue. I can't imagine the frustration and perhaps the out-right anger that they were not really next in line. If it were me, I suspect that I would spend whatever little energy that I had plotting a way to make myself famous so that I too could get a piece of someone's liver.

Surely in the year 2015 we can do something that prevents needless deaths. Right now in Ontario, if one wants to donate organs after death, one must fill out a form when renewing your health card; but one must also make your instructions clear to your family. Regardless of what is on your Ontario Health Card  or what other forms you have in your purse or wallet - hospitals and doctors always defer to the patient's family. A simple law stating that all organs can be harvested after a person dies unless they indicate that they don't want that, would ensure at least some of the 700 people waiting for a liver transplant and the thousands of others needing other transplants would not have to sit on a waiting list watching other people jump the queue.

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